This week will be my 90 day mark since they started my "re-birthing" process or stem cell transplant at the Huntsman Cancer Institute. It is a very important landmark because this Tuesday, I will undertake a barrage of tests to determine whether the procedure was a success and whether I have gone into remission. I will be undertaking a PET scan, blood and urine tests and my third bone marrow biopsy. To say that I am nervous would be an understatement. I am downright scared because I have come to realize in recent weeks how much reason I have to live and my fear has increased simultaneously with my hopes and desires.
There have been times in the past couple of weeks that this fear has overwhelmed me to the point that sleep has disappeared and I have lain awake for hours some nights. But then for some reason a kind of story that I used to tell my children came to my mind. I knew the message at the time when I shared it with them but the depth of it has come home to roost recently.
I wish that I could include a video in this blog because I can actually hear and see myself as I had fun with them in acting out the story. I have added italics to what I write next so that you get the idea of what I emphasized. It's called "Going on a bear hunt." It is a story from a book of the same name written by Michael Rosen and ilustrated by Helen Oxenbury. Here is some of the story which are in my version of the words:
"We're going on a bear hunt, going to catch a BIG one, I'M not scared, I'M not scared. It's a beautiful day. UH, OH! Grass, looong wavy grass. We can't go over it; we can't go under it; we can't go around it; We gotta go THROUGH it."
I would then make the actions of going through the long, wavy grass, "swish, swish, swish." The children came to know the story well and would go through the grass with me.
We would then continue on our adventure:
"We're going on a bear hunt, going to catch a BIG one, I'M not scared, I'M not scared. It's a beautiful day. UH, OH! A deep, cold river. We can't go over it; we can't go under it; we can't go around it; We gotta go THROUGH it." This time we would act like we were going through the water. Splash, splash, splash.
There were a number of obstacles and each time I declared that I wasn't scared but that we had to go through the obstacles. At the very end, it went like this:
"We're going on a bear hunt, going to catch a BIG one, I'M not scared, I'M not scared, It's a beautiful day. UH OH! A cave, a deep dark cave. UH OH! One shiny wet nose! Two big furry ears! Two big oogly eyes! IT'S A BEAR!!!!! RUN!! The children and I would then "run" rapidly back through the obstacles: squelch, squelch, splash, splash, swish, swish etc. until finally we arrived back at home, closed the gate, closed the door and breathed a sigh of relief that we were safe.
It was so much fun enacting out this story with all the facial expressions, hand gestures and body movements to illustrate what was happening. The message may have been fun but it was also very profound. When it comes to this cancer and all that it has brought with it, I can't go over it, I can't go under it, I can't go around it, I have to go THROUGH it. I don't have any appropriate hand signals or gestures to illustrate this but I do have to walk through the fear. And what about the end of the story?
The equivalent of my coming face to face with a bear is being told that my cancer has not been vanquished and that my prognosis is not good. If this is the case, I won't be able to run away but I will still have to go through many obstacles. Even if I go into remission, I am aware that it is not a cure as this is not a curable cancer. At the very minimum I will be put onto a maintenance regime of chemotherapy drugs for the rest of my life. It is not how I pictured my later years and the fear of all that means is real but I am clear that my choice is to go through it.
I can only dream that I will become much stronger as a person as I tackle each obstacle, as I endure each treatment. I can look positively that as I go through one obstacle, it will give me the strength and the confidence that I can handle the next. I can learn to believe and trust in my Heavenly Father as He walks alongside me on my "bear hunt", that He knows how best to develop my strengths and overcome my weaknesses. Alan brought to my mind a special scripture that goes puts these thoughts into perspective:
Psalms 23:
"1. The Lord is my shepherd; I shall not want
2. He maketh me to lie down in green pastures: he leadeth me beside the still waters.
3. He restoreth my soul: he leadeth me in the paths of righteousness for his name's sake.
4. Yea, though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me.
I may fear pain, the thought of leaving my family and friends early and the fear of not completing all that I was sent here to do but I do not fear evil. I was recently reminded that I have led a charmed life, not because I did not experience hard things but because the hard things have been matched by incredible spiritual experiences.
It is the wedding anniversary of my great, great grandparents, Willem Van Eck and Aleida Lobbers, married on this day in 1849. I am reminded that I am surrounded by my ancestors and I have felt their presence on many occasions. Tomorrow it is my wedding anniversary, a wonderful occasion to remind me that I have a wonderful husband and family and friends who uplift me so often.
The greatest blessing that I have enjoyed is the feeling of my Savior close by me my whole adult life. He is not just someone people write about. He is real to me. I have heard Him whisper in my heart and ears on more occasions than I can say. His love has sustained me through everything and I know that as I go through this next phase, that He will remain with me to comfort and lead me.
Jesus Christ, via LDS Media library |
PS I have engaged in a process for some time to write as many of those life experiences as I can into a book for my children and grandchildren at the very least. Do you think that others might want to read it too?
Marianne, your inspirations continue to amaze me. Something you just mentioned caught my attention. Whether you are long enough to do the work God has sent you here to do. Whatever work you get done is going to be long enough. He counts the hairs of our head as much as he counts the Days of Our Lives on Earth. I feel like you're going to be here for a while longer. Each of your writings has drawn people from all over the world and strengthened them. Even from your hospital room. I love you my sister in Christ. I have such a small plight compared to yours at this time. However your inspiration throughout the time that I have known you has given me strength beyond my own. I have hope when I know that I cannot see it with my family. I have courage where I didn't think I had any leftto move forward with faith. You my friend have done that for me. Imagine what you've done for the rest of the world. You have played an integral part in so many lives and you don't even know it. Much love to you. May the Lord bless you with continuous healing as he heals those around you πππ
ReplyDeleteMy Dearest Marianne, I cannot imagine what you must be going through. When I pray for you I always ask our Heavenly Father to give you strength, and through your beautiful words of inspiration I can see that he has answered my prayers. You ate the strongest woman I have ever known. You inspire so many people. You are amazing! Thank you for sharing that beautiful story you used to tell your children. I’m so happy that you are able to go on such a beautiful hike with your Dear Husband. You both are amazing! May our Heavenly Father place his healing arms around you always. I love and miss you❤️π
ReplyDeleteMaryann, I don't know if you remember me, Britta Eskey. I used to work together with Alan in the experiential workshops, which is, I believe, where you and I met once at least too. I know Alan was looking for you for years, and was so happy to have finally found you. My heart is aching for both of you, enduring these incredibly difficult trials. And I hear your trust and faith in God ringing clearly and beautifully through all of your written words. Love is stronger than anything, anything at all. That's what I read through your beautiful words, a raw, open and undefended vulnerability and an inner strength of love that surpasses all understanding. I was with a very dear friend named Rajyo, who Alan also knows well, for 5 years of her cancer treatment and have some idea of what it can be like. Her case was almost impossible, and she is cancer free now for several years. She always said: "I'll do everything I can to survive and fight for my life with all I've got. And simultaneously I'll prepare to die, as living in that way, with the imminence of death before me, is the best way to fully live each day anyways." I never forgot that and wanted to pass it on, in case it helps you. So much love and blessings to you.
ReplyDeleteWhat a beautiful entry. As always, your testimony and faith as you face challenges every day is such an inspiration. I loved the
ReplyDeletebear hunt analogy. If you listen to any operas, like your favorite, you may find it has depths that resonate unlike ever before. Life has more meaning everywhere you look when you face the other side. I hope you have a long happy life ahead. You are in my prayers. Love to you, Amy
Marianne, As always I am amazed at your strength and faith. I look forward to the day you will come smiling to church and wave at all of us who love you and Alan. I would love to give you a hug but know that a physical one must wait so I send a verbal hug which will have to do for the present. My prayers are with you. Love, Charlene
ReplyDeleteLast Friday I saw Alan and you on a walk close to the temple and was thrilled to see you out and about. The last blog I had read was of you working on gaining enough strength to walk from one end of the house to the other, so that was a beautiful sight to behold! Look at all that you have been able to accomplish thus far, you are an amazingly strong woman with incredible faith and determination. We love you so, and continue to think of you often and keep you in our prayers. God bless you!
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